Many parent carers caring for a child/young person with additional needs are juggling lots of things at once and dealing with complex issues. Getting appropriate support and information for your child becomes your priority and in many cases your own wants and needs get lost and forgotten about – as individuals, couples and families.
On this page you'll find information on and links to local support services who can support you in your role as a parent carer.
Our Carer Aware e-learning course may also be of interest to you.
NEW Southampton Parent Carer Forum "Walk and Talk" support group sessions at Southampton Common and Weston Shore. Flyer with all the information you need in the downloads section on the left hand side of this page.
FREE Stay and Play sessions for families with children with special needs and disabilities at Rosewood Free School Hall. These sessions are run by Southampton Parent Carer Forum. Flyer with all the information you need in the downloads section on the left hand side of this page.
Southampton Parent Carer Forum also run Coffee Mornings on a regular basis, please see the coffee morning flyers in the downloads section on the left hand side of this page.
Also, keep an eye out on the SEND Local Offer Facebook page for events/coffee mornings and information that may be useful to you and your family.
Contact - For families with disabled children offer a FREE Helpful Guide for families with children, young people and adults with disabilities. This consists of a 92-page booklet that puts all essential information in one place for carers — no matter where they are in their journey.
Link below for the Contact website to order a copy -
The Buzz Network is a service funded by Southampton City Council for parent carers of children with additional needs. Through signing up to The Buzz Network you can have access to:
- A coordinator for advice, information and regular newsletters
- Play and activity schemes
- Community based activities
- Max Card or Max Card Plus
Visit the Buzz Network page for eligibility criteria.
Carers in Southampton supports parent carers to look after their own health and wellbeing. The support from the service includes:
- Help for carers to get in touch with the support and services they need
- An opportunity for carers to get together
- Keeping carers informed about relevant local events
- Letting carers know what their rights and entitlements are
- Enabling carers to have their say
- Offering support when concerned about changes in the life of the person they care for
- Helping carers draw up an 'emergency plan'
- Offering support through a dedicated telephone helpline
Visit the Carers in Southampton website for further information or call them on 023 8058 2387.
We are a friendly group of parent carers who have children and young people with special educational needs and/or disabilities aged 0-25 years. We support and train parent carers to enable them to have input and be involved with shaping services alongside the professionals who provide health, education, adult and social services. Our shared mission is to improve and enhance the experiences and opportunities of children and young people with additional needs by enabling parents and carers to be heard and be at the heart of decisions about development and delivery of services in Southampton. The forum will represent the views of the collective community and not an individual voice. The role of the forum is not to advocate for individual families and will signpost to specialist services.
You might be struggling emotionally and looking for strategies to help you cope. Or maybe you just need to talk to someone who understands the extra challenges you face and who can point you in the right direction to get the support you need for your family.
To help, the Listening Ear service offer 1-1 telephone appointments with a family support adviser for parent carers looking for a listening ear, reassurance and practical and emotional support.
Please find below link to their website -
Steps to Wellbeing is a NHS funded service that is available to support adults that are experiencing difficulties with their mental health and/or wellbeing.
Following a chat and an assessment, they can offer various services and support strategies, some of which include cognative behavioural therapy and counselling.
You can self refer to the service, please find below link to their website -
Contact are a charitable organisation that offer useful advice and information to families with children and young people/adults with additional needs. This could be advice and information around benefits, support services, a live chat option and general support and advice.
Please find below link to their website -
A parent-led organisation supporting families whose children have Autism/ADHD and/or mental health needs.
This group is the primary link between Southampton Specialist CAMHS, The Autism Assessment Service and families. They offer advice clinics with CAMHS clinicians on autism, ADHD and mental health issues. They have face to face support groups, professional speakers and link with Adult Mental Health and Crisis Care Services for advice clinics and other information. As well as offering 1:1 support and advocacy they represent families views across the city. Re:Minds also have a sensory and book library families can borrow from and they run Re:Minds ReCharge a wellbeing and resilience course for families.
Please find the link to their website below
No Limits is an award-winning, local, independent charity providing a unique combination of prevention, early intervention and crisis support to young people, based on a nationally evidenced model.
They provide information, advice, counselling and support through a range of services available ‘under one roof’.
To have a look at the services that they offer and get help, click on the link below -
Welcome to the journey of Autism. We support families with their journey whether they are at the starting point or on the road. We offer 1-1 support to parent/carers with signposting to relevant agencies, advocacy at meetings for school, CAMHS, housing etc. We can support with form filling and paperwork. We also offer peer to peer matching as well as a group to meet others in similar situations. We promote to reduce isolation for families and hope to increase confidence and acceptance.
Our Autism family support workers can help with:
*Diagnosis support (pre/during/post)
*Parental EHCP applications
*Benefit and housing support
*Social care support
As a service we also offer:
*Access to group support including guest speakers on various topics
*online emotional support via Facebook
*peer to peer pairing
*School absence support and confidence building sessions
*life skills workshops
Please contact us with any support needs or more information
Link to website below -
The Special Educational Needs and Disability Information Advice and Support Service (SENDIASS) is a contracted service with the Local Authority and is based at Rose Road. This offers a free and impartial service to parents or carers living in Southampton whose children have special educational needs and disability.
Rose Road is a Southampton Charity established in 1952. We have been providing information and advice services to families since 2009. We pride ourselves on providing the information families need, via factsheets on our comprehensive website, telephone support and face to face support where it is needed.
Families can reach us on our local rate helpline number 0300 303 2677 or by email at email@example.com
Link to our website - https://www.southamptonsendiass.info/
Take at a look at our comprehensive resource library with lots of information available on relevant topics, here's the link -
Do you struggle with acronyms/abbreviations describing services/professionals on some of the reports/documents/information that you receive about your child/children/young person/adult?
Here's the link to a really useful jargon buster provided by Southampton SENDIASS -
When you are not sure where to turn, BRAAIN will give you the information you need. From details on specialist schools in the area, to accessing professional help, to finding out about clubs for your children and support groups for you. We are here to help make life a little easier on this journey.
Wherever you are in the diagnosis process, BRAAIN is here to help. Parenting a child with Attention Deficit Hyperactivity Disorder (ADHD), Autistic Spectrum Disorder (ASD) and / or other special needs is amazing, tough and sometimes isolating.
Click here for the link to the Braiin UK website.